On February 16, MS News Today had a post on their Facebook page. It was called Having a Swell Time. (cute, huh?) It talked about MS and edema. The part that interested me was that his neurologist was not concerned about it. Neither is mine. Most of my limitations are on my right side, which… Read More Fearless Friday
Tomorrow I have my first full dose of my new MS medicine. It is called Ocrevus. On two previous posts, I wrote about the first 2 half doses. I had no adverse reactions to the first two infusions. So I am expecting to have no reactions to the full dose of the infusion tomorrow. As… Read More Wednesday’s Word
Instead of my usual post, I’m going to send you to MultipleexperienceS. Jamie and I both have the chronic disease multiple sclerosis. She’s been diagnosed longer than I have, but many of our symptoms are the same. They may not be the same intensity but many are the same. We also have different ones. People… Read More Fearless Friday
I haven’t felt fearless this week. I feel like I have gone back to where I was before I took the Ampyra and maybe even worse. Or maybe it just seems that way. On Monday, I told you about the struggle to find financial assistance for the Ampyra I started taking a little over a year… Read More Fearless Friday
This article is fairly long and scientific, however, it’s a very good explanation of the science behind my new medicine. It is a worthy read. https://www.gene.com/stories/unconventional-wisdom?topic=multiple-sclerosis
I used to be fearless. I had the world by the tail. I knew what I wanted and went after it. I was successful and felt good about my life. Enter MS. Enter fear. Leading up to the diagnosis, I experienced several symptoms that were explained away by other conditions for three decades. Balance, ringing… Read More Why am I fearless?
I started taking Ampyra (the walking pill) the middle of August. Today I read an article in Multiple Sclerosis News Today discussing the merits, advantages, and the efficacy of Ampyra. As with any medication, it works for some and not others. A friend was in the clinical trials for the drug, but it didn’t work for… Read More The Walking Pill