Two more F words. Fatigue. Falling.
I had a bad fall last Thursday. I was walking into Denny’s restaurant for our monthly MS self-help group. I always use my cane when I am outside. Somehow I stubbed my right foot and went right down on my face. A very wonderful, chivalrous, Good Samaritan gentleman came over immediately and help me get my good leg underneath me and helped me stand up. I didn’t think that I had hurt myself very badly. But I did. Another good Samaritan, a woman, came over and helped me to the bathroom as I was bleeding from both hands and my face.
Both hands had three or four places on them that were scraped and bleeding. My nose was scraped all the way down the middle, and my lip was quickly turning purple and swelling. After I cleaned up in the bathroom my angel of the day help me to our table. Then one of my fellow MS’ers went out to my car to get my first aid kit.
I asked one of the Denny’s waiters for a bag of ice. Which I received. No one at the Denny’s restaurant, however, came to ask me if I was OK. Not even the waiter who gave me the ice pack. Not sure if that is a corporate policy, but it definitely made me feel uncared for.
It’s been a week and I am healing nicely. I was going to go get a passport photo after the meeting as my passport is soon to expire. I am still waiting for my face to heal all the way so I can get that accomplished.
I have spoken about how debilitating fatigue is for me. If there is one symptom that makes all the others I have much worse, it is definitely fatigue. I have decided to go on a new medicine. This will be my fourth trial medicine. The one I had previously is called amantadine. According to the Mayo Clinic side effects include dizziness, swelling of feet, dry mouth, and purplish red net like or blotchy spots on skin called livedo reticularis. It looks like I have on leopard tights. It’s been a week and those symptoms have decreased greatly. I should see even more decrease over the next week.
So I am now taking dextroamphetamine. I started on Sunday and took the prescribed dosage of one tablet twice a day. I had a horrible time sleeping. I would close my eyes and be wide awake. I took two again on Monday and had the same reaction that night. So I’ve been only taking one tablet in the morning. I’m sleeping very well again. I may go to one and a half see how I react. I certainly find myself crashing around 4 o’clock in the afternoon.
It is such a balancing act to find the right balance of health between symptoms decreasing and side effects increasing. I am very pleased that the prior negative side effects seem to be lessening.
Our bodies are so incredibly and wonderfully made. They heal after major bone breaks, scrapes and cuts, joint replacements, muscle pulls and tears, cancer treatments and even organ replacements. There seems to be one part of our body that is not made to heal itself. And that is our nerves. There are many diseases that affect the brain and causes damage to our central nervous system. There is no cure for many of these, including MS.
I receive a daily blog posting from the Ravi Zacharias International Ministries. This morning I read this quote from C.S. Lewis. “God sometimes seems to speak to us most intimately when God catches us, as it were, off our guard. Our preparations to receive [God] sometimes have the opposite effect.”
It made me smile because multiple sclerosis has definitely caught me off guard. I am sure there are others who will read this post that can say the same thing. There are many things to catch us off guard. But if we allow ourselves to draw closer to God, he will draw closer to us. If this is what God is using in my life or your life, we can be assured that God will be with us in the middle of our storm and only together will we find victory.
And that to me is pretty awesome!
Hard to like this after reading about your fall, Jo Ann….and the people at Denny’s. Were they scared you were going to sue them? Common courtesy would have been nice. I hope you are healing–it sounds like you took a really bad spill.
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Yes, I wonder where common curtesy has gone?? I am healing well, thank you!
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So thankful that the Lord kept you and that you are healing…I pau your new med will go well!
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Amen!
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I’m glad your healing. Sounds like a bad fall ☹️. You changed from Ocrevus already?
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No, just the fatigue specific med.
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Oh I got confused. Lol. I’ve been on a lot for fatigue too.
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No worries. There are so many medications for so many things it’s easy to get confused!
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I hope you are feeling stronger physically and that the bruising is healing. I love the idea that God is with us in the middle of our storm. It reminds me of that quote about the footprints in the sand. sometimes there are two sets and sometimes only one. The man ( or woman) asks God why he was not always there with him or her. Where did God go when there was only the one set of footprints. God replies: “that was when I carried you.”
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Amen! I feel like he carries me a lot!
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In only one restaurant have I ever been turned away because of my wheelchair. A dear friend was turned away because of … Perhaps y’all need to talk about where you meet.
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Wow—good to know! ☹️☹️
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So sorry about your fall and fatigue. I am suffering from both as well. My falls are not as bad as yours are; however, I have fallen out of bed two nights in a row now. I am glad you are healing. I am sending prayers your way.
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Thank you so much! Falling out of bed is a fear of mine. Some nights I have trouble rolling over, so some times I am working hard to make that happen and I get dangerously close to the side of the bed.
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I have a small bed bar that protects my head and upper body and gives me something to hold onto when trying to roll over. It may be worth looking into. I continue to send you prayers and blessings, Lydia.
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Awesome, I didn’t think about that!
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Your faith is very encouraging. Shameful behaviour of the staff at Denny’s . I guess we should be grateful they didn’t refuse the ice bag. May the Lord heal you completely and bless you in amazing ways.
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Thank you so much! He blesses me every day! Unfortunately, sometimes I don’t see it!
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Sorry to read about your fall. I hope you are feeling better. Thank God for the Good Samaritans who helped you. 🙏🏻
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Absolutely!
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Never was a Denny’s fan, but if I were, I’d be boycotting them now.
Hmmm, what about them burning coals, Lord???
😉
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😊😊😊
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I’m so sorry this happened to you! Prayers 🙏🏼
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Thank you!
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Sorry to hear you fell. I hope you heal quickly and I hope the fatigue medicine starts paying dividends.
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I like that – paying dividends!
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I’m sorry that you fell but I’m glad that you are healing! 🙂 I hope that the new meds help with your fatigue. I’ll be praying for you! ❤
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So far so good! Thank you so much!
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